To recap Conner in 2010:
-Before Conner was born, we did NOT know of his congenital heart defect (CHD), Tetralogy of Fallot (ToF)
-Conner was born 3 weeks early and was admitted to the NICU for having a difficult time breathing
-At some point in the next 36 hours (it's all a jumbled blur to us) we are notified that they believe Conner has a CHD and is taken to Primary Childrens Medical Center by Life Flight ground (driven), where his CHD is confirmed
-Conner spends the next 2 1/2 months in the NICU at PCMC
-We are finally able to bring Conner home on an NJ feeding tube (feeding tube in his nose, which feeds his intestines, not his tummy) at the end of April. A very joyful (and nerve wracking, overwhelming, and stressful) time
-Conner throws up anywhere from 5-25 times a day due to his severe acid reflux
-Conner's open heart surgery is scheduled and then rescheduled 3 times
-Conner gets his baby blessing by Paul and close family members at our home May 30th
-Conner undergoes open heart surgery to repair his ToF on June 22nd. The surgery lasts about 7 hours and is very successful. Conner stays in the hospital recovering for 2 weeks, and then is able to come home
-Conner finally passes is swallow study in July and they move his NJ feeding tube to an NG feeding tube, his tummy finally being able to get fed
-Conner has occupational therapy and feeding therapy each twice a month
-Conner undergoes surgery October 8th to have his g-tube placed (and also finally his circumcision). He is only in the hospital for 3 days this time before we are able to go home
-Conner has a cardiology check up in November which shows his pulmonary valve is leaking, which is fairly normal, but it's leaking more than they would like. The cardiologist says that Conner will need (most likely) to have his entire valve replaced, via another open heart sugery, in a few years. This means Conner will have some type of surgery or procedures done the rest of his life to replace/fix/upkeep his valve
-Conner is making significant progress in the eating department. We practice feeding him baby food twice a day, work on drinking with a special cup twice a day, and get him involved in food play as much as possible. Conner got his two little teeth on the bottom, and will munch on graham crackers and bread! This is a big deal! The feeding therapist thinks it will still be about a year before he is eating everything on his own, and we are able to remove his gtube.
-I am still pumping breast milk for Conner and also using frozen breast milk as well. We mix the bm with a special allergy-free formula to feed Conner
-Conner is 10 1/2 months old and is doing fantastic. Considering he has spent 3 months (collectively) in the hospital (nearly 1/4 of his life!) and has been through open heart surgery, he has overcome his development delays and is now exactly where he should be! He rolls over, crawls, pulls to stand, walks on furniture, jabbers constantly, and is one incredible little boy!!
To recap Annie and Paul in 2010:
-Paul started a new exciting job in Internet Marketing in July. He loves his new job and is amazing at it!
-Paul's company, Computer Fix, has been doing really well, and is ever-growing. He has big plans for the company for 2011, and is excited to see where it will take it!
-I gave birth in February to Conner. He is the 12th grandchild on both sides of the family
-I was blessed with an over-abundance of producing breast milk, which resulted in me being able to share my milk with 3 other babies. I had the huge blessing of being able to provide breast milk to a baby who was born addicted to meth (and was adopted by an amazing woman) for about 6 months. I sincerely believe this resulted in blessings for Conner, Paul and I that were much needed during our most challenging times.
-We both enjoy being a part of an amazing dinner group who meets once a month and does fun, unique, exciting, relaxing, and wonderful dinners/activities.
-We got to go to Sun Valley for the first time with our wonderful friends at their cabin. First family vaca!
-Paul is still the Ward Clerk in our ward and I am still the 1st counselor in young womens, and I love it!
-I started reading the Book of Mormon in August as part of the new Bishopbric challenge for the youth in our ward
-We sadly sold our wave runners to help pay for medical bills (with Paul switching jobs, we had to meet/max a new insurance plan)
-We both learned more about patience, love and sacrifice in the first few months after Conner was born, than we have our whole lives. We learned of the deep love of others, selflessness, and experienced prayers and fasting on behalf of our family. When I think about those first few months of Conner's life in the hospital, and the first months of him being home and his heart surgery, I feel overwhelmed with the memories and it always brings tears to my eyes.
-We continue to love our home and our neighborhood. We have an incredible ward, and wonderful friends
Here are pictures to also recap this year. I am sorry...I don't know how to use photoshop to make collages or anything like that...yet. I'm hoping to learn soon! So instead for now, you get a million pictures! Lucky you! I have tried to include pictures that I haven't ever included on my blog, or FB. There are a couple that show Conner the day of his heart surgery, and are sacred to us. I included them because I think they can portray a powerful message about what Conner has been through, and his strength.
8 months pregnant, almost there!
Day after Conner was born (not yet at PCMC)
Skin-to-skin time with momma
First full bath
Snuggle time with dad
Our sweet, wonderful nurse
Last day in the hospital
Our overnight in the hospital to 'practice' with Conner
Going home!
Blessing outfit
My friend made this awesome cake for his blessing day
Hanging out with Aunt Sheryl and cousin Jaden!
Getting out and about
Daddy taking care of Conner with the moby and multi-tasking
Conner's chest pre-surgery
Getting prepped for open heart surgery
Hours after open heart surgery
Resting
An angel our friends gave us whose baby also had the same CHD repair. We passed it onto this beautiful, precious baby girl, who also had ToF and other heart problems.
Leaving the hospital after 2 weeks recovery
Nap time with Grandpa
Conner giving a thumbs up, all is well!
The heart walk in September for Intermountain Healing Hearts group we are a part of
First family vacation in Sun Valley
Getting ready for gtube surgery
Recovering from gtube surgery with a big sock on his hand so Conner wouldn't pull out his i.v. out
"Rock Band" family for Halloween
Meeting Santa for the first time
At Temple Square to see the lights
Conner's first Christmas
Family's first Christmas together
Happy, loving, adventurous Conner!
